
Below are the stories of some of our members. Click on the names of the children's stories you would like to read. We hope you find our stories helpful and hopeful. To share your story click here
Many of our member's have CaringBridge Site's. This easy to use website helps you create a website for your child. No more calling everyone with updates. Just give your friends and family the link to your child's website and they can check up on your child when it is convenient for them. (If you need help setting up the website, visit the Family Resource Center on the 2nd floor in LCH and someone will be glad to help you.) If you would like one or would like to know more about them click this link- www.caringbridge.org
AP window, VSD and Pulmonary Stenosis
Amanda Duncan
Corarctation of the Aorta
Madelynn Addler
Corarctation of the Aorta, TGA, 2 VSD's, ECMO, G-tube/Mic-Key button, ASD add by Dr.'s
Carter T Anderson
Congenital heart disease diagnosed at birth
Luther Moore; Fibroma
Critical Aortic Stenosis resulting in a Heart Transplant, New Heart had Coarctation of Aorta and ASD repaired. Nissen Fundoplication, G Tube
Graham Baakko
HLHS, Norwood Procedure, Nissen Procedure, G-tube/Mickey Button, Heart Transplant
Skylar Christian Myers
HLHS
Trent Williams
HRHS: Pulmonary/Tricuspid Atresia
Madison Spangler
HRHS, BT Shunt, Glenn Shunt
Charles “Ford” Mauntel
Interrupted Aortic Arch,VSD, ASD, Reoccurring Coarctation x 2, Sub-Aortic Stenosis, Bicuspid Aortic Valve, AV Heart Block
Richard James
Mitral Stenosis
Madalynn Nancy Lowder
Pulmonary Steosis, and VSD
Raquan Littlejohn
left- transposition of the great arteries
Bradley Cox
Single Ventricle Anomalies and Fontan cirulation James Bachenheimer Defect
James
Single Ventricle
Jake Johnson
Single Ventricle- Double Inlet
Mary McKenzie
Tetralogy of Fallot - two surgeries. 6 months to correct VSD and Stenosis at pulmonary valve. 5 years old pulmonary valve replacement.
Jessica
Tricuspid Atresia, B-T shunt (CMC),1st stage Fontan ( last stage still to be completed) – Children’s Healthcare of Atlanta, T.E. Fistula Repair, Tracheostomy, Nissen Fundoplication, and G-tube
Victoria Faith Hall
Tricuspid Atresia, Transposition of the Great Arteries, Dextrocardia, BT Shunt - Jan. 2006 at 5 days old, Glenn - Oct. 2006 at 9 months old, Fontan - Jan 2009 at 3 years old.
Melia Haury
Angels
Shone's Syndrome (Aortic Valve Stenosis, Mitral Valve Stenosis and Coarctation of the aorta)
Treatment:
1993 coarctation surgically repaired, aortic valve ballooned, coarctation ballooned, aortic valve ballooned again
1994 aortic valve ballooned again, aortic valve surgically repaired(scheduled for Ross procedure but was able to successfully repair--lasted for over 12 years)
2006 surgically repaired aortic valve
Jacob Jackson
Hypoplastic Left Heart Syndrome with Mitral Stenosis and Atrial Stenosis
Caroline Jackson
Patent Ductus Arteriosus
Morgan Stebbins