Our Stories

Here is the link to our online group forum, as well as the stories of some of our members. Click on the names of the children's stories you would like to read. We hope you find our stories helpful and hopeful. To share your story click here.

Levine Cardiac Kids forum is http://levinecardiackids.forumotion.com/

Corarctation of the Aorta
Madelynn Addler

Corarctation of the Aorta, TGA, 2 VSD's, ECMO, G-tube/Mic-Key button, ASD add by Dr.'s
Carter T Anderson

Congenital heart disease diagnosed at birth
Luther Moore; Fibroma

Critical Aortic Stenosis resulting in a Heart Transplant, New Heart had Coarctation of Aorta and ASD repaired. Nissen Fundoplication, G Tube
Graham Baakko

HLHS, Norwood Procedure, Nissen Procedure, G-tube/Mickey Button, Heart Transplant
Skylar Christian Myers

HRHS: Pulmonary/Tricuspid Atresia
Madison Spangler

HRHS, BT Shunt, Glenn Shunt
Charles “Ford” Mauntel

Shone's Syndrome (Aortic Valve Stenosis, Mitral Valve Stenosis and Coarctation of the aorta)
Treatment:
1993 coarctation surgically repaired, aortic valve ballooned, coarctation ballooned, aortic valve ballooned again
1994 aortic valve ballooned again, aortic valve surgically repaired(scheduled for Ross procedure but was able to successfully repair--lasted for over 12 years)
2006 surgically repaired aortic valve
Jacob Jackson 16 year's old

Tetralogy of Fallot - two surgeries. 6 months to correct VSD and Stenosis at pulmonary valve. 5 years old pulmonary valve replacement.
Jessica Marie Whitt

Tricuspid Atresia, B-T shunt (CMC),1st stage Fontan ( last stage still to be completed) – Children’s Healthcare of Atlanta, T.E. Fistula Repair, Tracheostomy, Nissen Fundoplication, and G-tube
Victoria Faith Hall      

Tricuspid Atresia, Transposition of the Great Arteries, Dextrocardia, BT Shunt - Jan. 2006 at 5 days old, Glenn - Oct. 2006 at 9 months old, Fontan - Jan 2009 at 3 years old.
Melia Haury                            

Rory Bone's website is http://rorysheart.com/journal/

Bradley Cox website is http://www.caringbridge.org/visit/bradleycox

Maggie Duncan's website is http://www.caringbridge.org/visit/maggieduncan

Lydia Faith Chamber's website is http://caringbridge.org/cb/inputSiteName.do?method=search&siteName=lydiafaithchambers

Caroline Jackson's website is www.sweetbabycaroline.com

Richard James website is http://www.caringbridge.org/visit/richardjames

Jake Johnson's website is http://www.caringbridge.org/visit/jakejohnson

Mary McKenzie's website is http://www.caringbridge.org/visit/marygracemckenzie

Stephanie AKA "The Champ" Metzger's website is http://www.caringbridge.org/visit/thechamp

Morgan Stebbins website is http://www.caringbridge.org/visit/morganstebbins

The Caringbridge website

Check out www.caringbridge.org This easy to use website helps you create a website for your child. No more calling everyone with updates. Just give your friends and family the link to your child's website and they can check up on your child when it is convenient for them. (If you need help setting up the website, visit the Family Resource Center on the 2nd floor in LCH and someone will be glad to help you.)